This all started when a coordinator from the Durham county health department got in touch with me a couple of months ago to help us get Ethan's occupational therapy at home and assist with any of his other needs. We got the OT going (his therapist is awesome) and the Coordinator called me to ask how things were going and if I needed anything else.
I excitedly told her about how I had
found some other parents online to email with about their children with
Tufted Angioma's and she asked if I could talk with them over the phone. I
explained that they're in other parts of the world and that I was going
to get Skype up and going, but that I had to buy a headset first. She
told me that there is an organization that would actually be willing to
buy that for me so that I can have some kind of access to a support
network and asked if there were any other items that we needed help
purchasing. I mentioned that Ethan's occupational therapist thought it'd be
a good idea for him to have his own toys to prevent spreading germs...
so she said we'd include that, too.